Jessie May are a specialist nursing support service delivered to children with life-limiting and life-threatening conditions in their own homes, so that families can have respite from caring, siblings can have some quality time with their mum or dad, and the Jessie May child can safely access activities they can enjoy with a nurse they know and trust, whilst having all the care they require.
Jessie May Mission:
Our mission is to provide the very best care and support possible, at home, for children and young people with life-limiting and life-threatening conditions and their whole families – for the whole journey in life, at the end of life, and in bereavement.
Values:
· We put children and families first
· We are kind, passionate and committed
· We are honest, respectful and collaborative
For more information please visit: www.jessiemay.org.uk or email info@jessiemay.org.uk
Please keep an eye on Sacha’s Events page for fundraising events or contact Jessie May for fundraising information.
What Jessie May Meant to Sacha and Our Family
It is difficult to put into words just how much Jessie May, and one nurse in particular, meant to Sacha and our family. Sacha was incredibly fortunate to be cared for by an amazing team of nurses—Mary, Mel, Tracey, and Fran. He loved them all dearly, but Mary held a truly special place in his heart. Without a doubt, Mary was Sacha’s best friend—his “bestie.” He adored spending time with her, and for days after each visit, he would excitedly talk about their time together—especially about knocking down Mary’s block towers, which never failed to make him laugh with pure joy. He would often wake his mumma in the middle of the night to talk about these blocks and Mary.
Mary, Mel, and Tracey dedicated countless hours to making Sacha’s life as fun and fulfilling as possible. They played endlessly with his favourite toys, read book after book—especially his beloved Julia Donaldson stories—and took him on walks to the park, always ensuring he had the happiest of days. Nothing was ever too much for them. Though Sacha cherished them all, his bond with Mary was extraordinary. She was his true bestie, and he will always be her “Tinky Rotter” for toppling the block towers. The way his eyes sparkled and his voice filled with love whenever he spoke about Mary is a memory we will forever hold close to our hearts.
As parents, watching Sacha’s relationship with the Jessie May nurses grow was incredibly special. Seeing his face light up when they arrived, hearing his laughter, and witnessing the joy they brought him meant everything to us. Because of Sacha’s medical complexities, letting people into our world and fully trusting them was not easy—but we are so grateful that we did. The love and happiness they brought into Sacha’s life were immeasurable.
What Jessie May gave us as a family was equally invaluable. Their care allowed us rare moments of respite—to focus on our daughter and older sons, and to support each other as a couple. Even now, they continue to stand by us, helping us navigate the immense grief of losing Sacha. They have been a light for us in the darkest of times, filling our lives with warmth, love, and treasured memories that we will cherish forever.
What they have done for Sacha, and for us can never truly be repaid. We are in aweof the incredible work they do every day. From the bottom of our hearts, thank you.
A piece from Mary, Mel and the team…
‘We were absolutely blessed to get to know Sacha and his amazing family, to be welcomed so warmly into the homes and lives of the families we work with is a privilege that we are thankful for every day. Our time with Sacha will be remembered always and he will hold a special place in each of our hearts forever.
Sacha never failed to make us and all those he met smile – he would take joy in making others happy and never failed to keep us on our toes – we spent many hours dashing around the park whilst he chose which slide to choose or which bridge to cross – he had no fear! This was evident in his ability to fight his every day challenges with such resilience – and always with a cheeky smile.
Our tower building games and the joy that brought him and the way this was remembered by him so fondly show that the small things we do every day really do make a difference and we are honoured to be a small part of Sacha’s big world.
Thank you for welcoming us, thank you for sharing your precious moments with us and please know that Sacha will hold a place in all of our hearts always – we will remember our ‘Tinky Rotter’ forever x’
